Thursday, October 7, 2010

What A Day!

Where do I even begin?

Me & Ryder were going to have a busy day today, which I was prepared for, but what I was NOT prepared for was to show up to Nana’s house and see my baby with a big huge fat lip!  I know that he’s a boy, and he just learned how to walk, and I know that he is going to have accidents, and I thought I was prepared for all of that…but reality hit me today that I am not.  I’m not ready!  What am I going to do??  Truthfully, I’m glad I wasn’t there when it happened because I probably would have panicked and made the situation way worse than what it was, but Ryder came running across the kitchen floor, slipped and fell face forward into the living room, and smashed his face into the wooden handle on the recliner.  There were tears, and blood.  When I picked him up he looked like Bubba Gump, seriously!  The bottom left side of his lip was sticking out so far and his cheek was swollen.  This picture was taken tonight after most of the swelling has gone down, but you can still see where he hit his lip.  The inside of his lip is all cut up, poor baby.

079

As you can see it affected me way more than it affected him!  I’m a mess.

So after I decided against taking him to get stitches (thankfully my husband is a manly man and can talk me down …) we just continued on with our busy day.

First stop was to see a new Doctor!  He was a Physiatrist which is basically a rehab doctor.  He is going to facilitate Ryder’s recovery from his stroke now, which takes a lot of weight off of my shoulders.  Me & Google have done a pretty good job so far, but we are a dangerous team, so I’m happy to pass the baton to someone who actually knows what they are talking about!  Ryder was out of sorts, but Dr. Dillard was still very impressed with him and said that we have been doing all of the right things.  He wants him back in Occupational Therapy ASAP (that’s a whole other paragraph that I don’t feel like typing tonight) and to continue with our weekly Physical Therapy visits.  He was happy to hear that Ryder will have his orthotics next week and also that he has gotten a referral to see an Ophthalmologist.  He will be seeing Ryder back in 3 months to check his progress and adjust anything as needed.  We talked about some possible treatments for Ryder in the future, such as botox and constraint therapy, and both agreed to let some time go by and revisit the discussion.  Overall it was a great appointment, and I’m so happy to have him on our team!

Next stop…physical therapy.  We didn’t actually have to stop anywhere since we were already there…the convenience of being at Children’s Hospital!  Ryder had a great therapy appointment today, even considering all of the drama his day had already brought about.  I don’t know if I mention it enough but I absolutely love his Phsyical Therapist.  She has helped Ryder work through so many things and by far gets the best results out of him.  Today, she taped noodles (like the kind in the pool) to the ground and had him walking and stepping over the noodles as he got to them.  Of course he tripped over every single one (all I could picture was another fat lip) but she was persistent in guiding him to step over them and telling him to watch his step, so by the end of the session he was finally walking carefully, getting to the noodle, lifting his leg dramatically and stepping OVER the noodle without falling, it was really impressive.  When he accomplishes tasks like these that come so naturally to most but are SO difficult for him, I couldn’t be more proud. 

And thennnn…we went to Carter’s house so Ryder could stay and play with Carter, Denise, & Carl, while me & Angela went to meet the blog girls for dinner.  I meant to leave my camera so Denise could take some pictures of the boys playing (would have been some great blog material…if only Ryder wouldn’t have gotten that fat lip and threw my day all off!) but we did manage to get a picture of all the ladies who made it out tonight (Nicki, Jen, Lindsay, Me, Jelena, Angela, and Patty):

bloggirls I love these girls.  Of course I had to get out my story first about how traumatic my day was and they all had so much compassion, each of them knowing darn well how over-dramatic I was being.  Haha, thanks for always understanding girls!

And now it’s time for bed…after I go on a manhunt for a ridiculous amount of paperwork that Medicaid is asking me for now…so glad tomorrow is Friday!

Wednesday, October 6, 2010

One Word Wednesday

**Helping**

helping1

Meet Baby Nick!

Before we all go goo-goo-gaa-gaa over the new baby, I have to tell a story:

rydershirt2 rydershirt

Ryder wore this shirt to Nana’s today in honor of Karen (Nana’s youngest daughter), the new Mommy.  She had Baby Nicholas 2.5 weeks ago, and just like Ryder he was premature and had to spend his first couple weeks in the NICU.  While Baby Nick was in the NICU, Karen stayed at her Moms house (where Ryder spends his days) and was pumping milk around the clock to bring to the NICU (brings back so many memories!).  Every time Karen went to pump, where do you think Ryder was???  Right behind her yelling “PUMP!”  He insisted on keeping her company, and announcing to the whole house that that’s what they were doing.  Ryder definitely bonded with Karen in these past few weeks and even curled up in her lap and fell asleep the first day that she had to come home without the baby.  Baby Nick is home now (they are still staying at Nana’s) and Ryder was a little jealous the first day.  But now he has gotten used to having the baby around and talks about him non-stop in the evenings.  It usually goes something like “Baby Nick, awwww, Wal-mart”…don’t ask me, maybe that’s where he thinks babies come from (or maybe he wants to return him!)

Okay, enough rambling, meet Nicholas Jesse…Ryder’s newest cousin and the most precious little baby boy that I got to hold and snuggle this morning :)

Nicholas Jesse

Monday, October 4, 2010

Team Ryder Update!

KidneyWalk 014 small

It’s almost that time of year again!!  We have about a month before the 2010 Kidney Walk and we are already over half way to our goal of raising $2,000 to support the National Kidney Foundation! 

kidney collage

Thank you SO MUCH to everyone who has made a donation already and to those who have joined the team!  For those who haven’t but still want to, log onto http://walk.kidney.org/goto/teamryder where you can choose to join or donate.  While you’re there, make sure you click the “Honorary Family” link to read about why we love Ryder’s kidneys so much :)

kidney collage 2

We will have Team Ryder shirts made again this year and will have to get the order in by next Friday, so if you plan to participate, make sure you have joined by then.  And if you’re already on the team, email me your shirt size.

If you have any questions at all feel free to email me! Bam126@gmail.com

Hope to see you on November 7th for a little 3 mile walk that makes a whole LOT of difference!

Saturday, October 2, 2010

Today Is…

One of my favorite days of the year because it’s Alan’s Birthday!  Where would my life be if a little 3 pound twin baby boy was never brought into this world on October 2nd, 29 years ago??  I celebrate today not only because he’s closer to 30 than me, but because my life would not be complete without him.

kisses Happy Birthday, to the best Daddy and best Husband we could have ever asked for!  Hope you enjoyed your Birthday…

021

022

024

026

My guess is that it was his best one yet!  If you haven’t already guessed by the pictures, Alan traded his bike in on a brand new one and is so in love with his new ride!  He was probably singing “Happy Birthday to Me” the whole way home ;-)

Wednesday, September 29, 2010

18 Month Dr. Appt & Some Big News!

Today Ryder had his 18 month check-up…and everything went well.  He is 31.5 inches long which is in the 25th percentile for his age.  She was happy to see that he had grown taller since he hasn’t at his last few appointments.  But his weight hasn’t gone up at all, he isn’t even on the percentile chart!  He is only 20.6 pounds!  I assured her that he eats great and has a wonderful appetite, but I guess he just burns it fast by always being on the go!  We left there with a prescription to try a new lotion for his Eczema, and a referral to a Pediatric Ophthalmologist. 

Okay…onto way more exciting stuff…I got a letter in the mail today…anddddddd….

Ryder got approved for Medicaid!!! 

Exciting, right?!  After a long wait and a hard fight, we don’t need to worry any more about insurance holding us back on Ryder’s road to recovery!  We don’t qualify for Medicaid because of our income, so it was pretty tricky to get him covered, but basically he was determined disabled so that made him eligible for the Elderly or Disabled with Consumer Direction waiver.  Last Monday we had someone from Social Services and someone from the Department of Health come out to the house and do an evaluation to see if he qualified for the waiver.  By being on this waiver, he is able to receive Long Term Medicaid which is a HUGE answered prayer for us.  So, we’re set to start therapy back tomorrow!  And if the insurance company denies it, then I can shrug it off and submit the claim to Medicaid who will cover all medical costs that our insurance does not cover. 

And now we can exhale…

Tuesday, September 28, 2010

Ryder = Rider

This boy sure does live true to his name!